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After countless hours and multiple birthdays and holidays spent at basic ways to make money the hospital for sick children (sickkids), gregory now refers to the hospital as his “second home”. His journey began when he was three weeks of age basic ways to make money when he came to sickkids for a CT scan as basic ways to make money his pediatrician was concerned about protrusion of his eyes and basic ways to make money the shape of his skull.

It wasn’t until he was nearly two years of age that basic ways to make money gregory was definitively diagnosed with crouzon syndrome, a genetic disorder that causes certain skull bones to fuse basic ways to make money and thus affects the shape of the head and face. At nine years old gregory’s healthcare team also discovered that he had osteochondritis dissecans, which is a bone and cartilage defect in both his basic ways to make money knees. He also has additional muscle tone issues that make it basic ways to make money difficult for gregory to perform everyday activities, like standing or writing for extended periods of time.

As a result of his diagnoses, gregory has undergone 25 surgeries. Among them, 14 were brain surgeries, four major craniofacial surgeries and multiple other expansion surgeries as basic ways to make money his crouzon syndrome prevents his skull from growing and puts basic ways to make money pressure on his brain. Gregory also suffers from permanent eye damage so he received basic ways to make money specially made glasses from sickkids to synchronize the vision in basic ways to make money his eyes. However, gregory remains legally blind due to a lack of depth basic ways to make money perception and peripheral vision. He also has a hearing loss, requiring him to wear hearing aids and use an FM basic ways to make money system at school.

Despite the medical obstacles he has been challenged with throughout basic ways to make money his life, gregory remains optimistic and attributes much of his positivity to basic ways to make money the care he receives while at sickkids. He is grateful for how compassionate sickkids staff are throughout basic ways to make money his long stays at the hospital and remarks specifically on basic ways to make money their ability to “make light of a serious situation”. He remembers one doctor asking him if he wanted to basic ways to make money undergo his surgery sooner or later when they decided that’s what he needed. Gregory says “I don’t think many other hospitals give kids that kind of basic ways to make money choice.”

In addition to the support of the medical staff, gregory has memorable experiences with the therapeutic clowns as well basic ways to make money as the child life specialists who have toys, play games and do arts and crafts. Gregory says that if you meet anyone wearing a multi-coloured sickkids lanyard, you’re guaranteed to be meeting someone ‘super-nice!’ they are able to keep his mind off of anything basic ways to make money that might be worrying him.

In 2014 geoffrey began running a very high fever (40°C). The fever wouldn’t break. He had low appetite and generally was feeling unwell. His doctor ordered blood tests and learned that his liver basic ways to make money enzymes were abnormally high and told geoffrey’s family to take him to the hospital for sick basic ways to make money children. He was seen by the emergency department and there were basic ways to make money findings of viral infection. He was sent home and told to return if his basic ways to make money symptoms didn’t resolve. A couple of weeks later his temperature was still elevated basic ways to make money and he was admitted to the general paediatrics unit at basic ways to make money sickkids and during the month-long period during which his fever didn’t subside he had many tests and workups. With no definitive diagnosis his medical team sent him for basic ways to make money a bone marrow biopsy and aspirate. It was then that a diagnosis was made. Geoffrey had HLH (hemophagocytic lymphohistiocytosis), an aggressive and life-threatening condition of the immune system. In HLH, the immune system gets confused. Sometimes, it works too much, causing excessive inflammation and tissue damage. Other times, the immune system fails to work normally, leaving patients at risk for serious infections.

Geoffrey began treatment as soon as the diagnosis was made. While he experienced side effects, initially he had a good response to the medicine and basic ways to make money had regular clinic visits in rheumatology and haematology. During a follow up, his blood work showed very low counts and further testing basic ways to make money lead to a new diagnosis of MDS, myelodysplastic syndrome. From this point on geoffrey began to be seen by basic ways to make money the bone marrow failure clinic. He was placed on a new trial drug with a basic ways to make money goal of preparing him for an unrelated bone marrow transplant.

A suitable donor was found and in january 2016 geoffrey basic ways to make money went into the sickkids bone marrow transplant isolation unit. He spent about a month in the unit. Geoffrey then began to experience many post-BMT complications, the most serious and chronic of these being graft VS basic ways to make money host disease. Since his bone marrow transplant he has suffered serious liver basic ways to make money damage and his medical team has been trying to strike basic ways to make money the proper balance of medications to battle the graft VS basic ways to make money host disease while ensuring that his liver is not suffering basic ways to make money further toxicity from the drugs.

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