Our story regional pain syndrome rsd good ways to make money online uk

Burning nights CRPS support began as the title for victoria’s, the founder and chair or trustees, autobiography that she is currently trying to get published and good ways to make money online has been writing for a few years now. The actual words for the title for the book was good ways to make money online because of the burning pain from the CRPS that she good ways to make money online felt as a sufferer, along with thousands of other CRPS sufferers and because it good ways to make money online burnt more at night after the day was over and good ways to make money online things calmed down. So the name ‘burning nights’it was! After victoria was told in july 2014 that it was good ways to make money online very likely she would need her 2nd leg amputated because good ways to make money online of the aggressive and severe symptoms she had, she decided that she wanted to create an awareness website good ways to make money online for CRPS sufferers in the UK and worldwide. Before this point in her time with the condition, victoria had been far too poorly and in hospital so good ways to make money online much that there was no possible way that she could good ways to make money online do what she wanted to do to help other sufferers good ways to make money online and their families, friends, carers and loved ones. The website, social media and content was finally up and running on good ways to make money online 1st september 2014. So this was how burning nights CRPS support began.

When victoria finally found a great web design company to good ways to make money online help her fulfill the task of setting up the website, she wasn’t disappointed in her eventual choice after some problems not good ways to make money online concerning the company. The content for the website was written and one of good ways to make money online the main aims for the website and for more importantly good ways to make money online burning nights, is that the everything is evidence based and is as good ways to make money online up to date as possible. This is a philosophy of burning nights is to ensure good ways to make money online that you, the reader, can be reassured that the information we give out is good ways to make money online accurate and current.

Products and awareness leaflets were added to the website along good ways to make money online with an online community forum where sufferers as well as good ways to make money online loved ones, family members, friends and carers can go and chat with others like good ways to make money online you who have lived with the condition and who are good ways to make money online going through life with complex regional pain syndrome (CRPS). Burning nights became a non-profit organisation and we didn’t realise the actual desperate need for our website, information and products from sufferers, family members, and friends as well as the need from the medical good ways to make money online professionals themselves.

Every year during the whole of the month of november, starting off with ‘ colour the world orange’ day on the 1st monday of every november, we have international CRPS awareness month. Overall international CRPS awareness month, november 2015, was extremely successful! We had our inaugural meet & greet conference on saturday 7th november which was a huge good ways to make money online success for everyone who came. We had some great speakers and at times the day good ways to make money online became quite emotional. You can watch a short 5 minute video of the good ways to make money online highlights of the meet & greet conference which you can watch in our youtube channel.

There were a number of fundraisers that went on including; lisa davis who shaved off all of her hair and good ways to make money online raised £1,000! There were coffee mornings, a curry night, house of commons bottle of wine with the signature of good ways to make money online david cameron MP & prime minister auction, 3 month sponsored beard grow, raffle during the conference, generous donations and much more! You can read about our fundraisers on our FUNDRAISING page.

7 november 2015 was the date of our inaugural meet good ways to make money online & greet conference event and we held it at the birmingham good ways to make money online marriott hotel. It was a fantastic day and everyone enjoyed it! We held a raffle with some great prizes including a good ways to make money online unique painting by an artist who is also a CRPS good ways to make money online sufferer, natalie sheridan and another CRPS sufferer, larissa ralph brought some beautifully made cupcakes and she kindly good ways to make money online donated the money received to us. In 2016, we held our 2nd annual conference on SATURDAY 10th SEPTEMBER good ways to make money online 2016. It was a full FREE 1 day event, lunch and refreshments were included within the day.

Our charity application is now completed and we are now good ways to make money online a registered UK charity for CRPS, which is fabulous news! Our charity registration number is 1166522. We really hope that with the sponsorship from brian barr good ways to make money online and BLB solicitors, BLB solicitors, cromptons solicitors and any other companies who chose to help good ways to make money online us with sponsorship, that we will be able to create a long term, successful and sustainable charity for CRPS sufferers their families, friends, carers and loved ones. Thank you to everyone who has helped, who is helping and who are planning to help us good ways to make money online grow this important charity. This is our story!

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